“The liver damage means we cannot follow the normal protocol for neuroblastoma,” Leanne says. In August 2018, Warren and Leanne Masten rushed Addi to Children’s Healthcare of Atlanta — Scottish Rite with suspected appendicitis. Most symptoms of myoclonic astatic epilepsy appear between ages one and five.) Since then her story has touched countless lives. Last Wednesday Addison started vomitting at home followed by numerous seizures.

There will also be a special presentation before the Battle of the Heroes in memory of Habersham County Deputy Patrick Mayfield and Hall County Deputy Nicolas Blane Dixon who both recently passed away. for about 20 minutes and her oxygen level dropped so low that the doctors almost had to incubate her.

There will be some folks at Scottish Rite to guide them through these tough conversations.

All criminal suspects including Samantha Cassandra Ghanes are innocent until proven guilty. Addi is being tested for Doose Syndrome (Myoclonic astatic epilepsy (MAE), also known as Doose syndrome, is an epilepsy syndrome of early childhood usually characterized by difficult to control generalized seizures. The concern was for osteosarcoma or Ewing’s Sarcoma, both a form of bone cancer. Please check your email for further instructions. “I resigned my executive position, and we embraced doing what had we had to do for Addi.

People have raised more money on GoFundMe than anywhere else. Fireworks will cap off the evening approximately ten minutes after the football game ends and will appear on the east side of Raider Stadium toward GA 197 South. Clarkesville, GA 30523, PHONE:1-844-NOW-NEWS Atlanta RMHC is recognized as a public charity under Internal Revenue Code section 501(c)(3) status. Patients may experience … Learn more, Contact us with your questions and we’ll answer, day or night. FAX: 1-844-205-7259.

People may donate at the gate if they choose. If you have to be here, here is where you want to be.”, The playroom is Addi’s favorite, Leanne says. A copy of the Atlanta RMHC determination letter is available upon request. “The next week was full of tests, biopsies, scans and getting rid of the nasty cellulitis. The Atlanta RMHC EIN is 58-1295754.
Casey Lizama, a friend of Easton, wanted to help other teens with pain and loss but, at the same time encourage other youth to connect with their community and become leaders. She/family has been added to our church’s prayer list.

The Facebook page dedicated to sharing her journey through cancer has more than 230,000 followers. Addi was diagnosed with Neuroblastoma Stage 4 High Risk cancer in her kidney and adrenal gland that had metastasized to her skull, arms, hips and her lungs. A few hours later, doctors shattered their world with a diagnosis of cancer and a severe case of cellulitis. Addi and her mom and dad have spent long days at Scottish Rite getting more tests, lab work, and scans to make sure they know the full story before the entire treatment plan is defined. Lindsay Herrin is organizing this fundraiser on behalf of Leanne Masten. Birthdays are milestones used to measure a life’s journey. This site uses cookies and has essential privacy policies.

Change ), You are commenting using your Twitter account. “It’s amazing and so convenient to the hospital. Fireworks will cap off the evening at Raider Stadium on August 10. Addison continues to have seizures daily and the doctors continue to up the dosage of meds. Change ), You are commenting using your Facebook account. On Thursday she had a seizure that lasted over 45 min.

The CT scan of her chest was “clear” which is wonderful news and gives her an excellent prognosis. Since that time Addi has fought for her life and has endured more than most do in a lifetime. It has been one week since Addi left the hospital. We are doing OK.”. About the Easton Foundation: The Easton Foundation is a 501(c)(3) charity located in Habersham County, Georgia. It was such a relief. In the past, the foundation has charged to get into the game but not this year; admission is free. As some of you may know, Addi was having some pain in her left leg over the past few weeks, a slight limp and some mild fatigue. May 5.

“It’s just wonderful to stay here,” Leanne says.

Addi Ghanes of Toccoa will serve as co-grand marshal of this year’s event along with Habersham County School Superintendent Matthew Cooper. Since then her story has touched countless lives. Addi is being tested for Doose Syndrome (Myoclonic astatic epilepsy (MAE), also known as Doose syndrome, is an epilepsy syndrome of early childhood usually characterized by difficult to control generalized seizures. Addi is a beautiful, happy 2-year old girl who was recently diagnosed with neuroblastoma (a rare cancer often diagnosed first in the adrenal glands atop the kidneys). ROTC cadets from Habersham Central High School will participate in pre-game festivities and the HCHS Band of Blue will perform throughout the contest. Alex Suarez Jr. “I can't imagine being in a place far from home on a holiday that I would normally celebrate in my... Birthdays are milestones used to measure a life’s journey.

The Easton Foundation will host its Seventh Annual Battle of the Heroes football game in Raider Stadium on Saturday, Aug. 10th.

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In late February, Addi experienced liver failure. On May 26, Addi Ghanes celebrated her third with her aunt, uncle and extended family.

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